What is LupusChat?
LupusChat was created to amplify caregiver and patient voices within the healthcare sector & help build meaningful relationships fostering dynamic change between the Lupus community and healthcare professionals.
We host an online Twitter chat bi-weekly on Sundays at 3:00 pm ET where we discuss a wide range of health concerns and the significance they have on the lives of those living with Lupus.
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what is lupus?
Lupus is a chronic inflammatory disease caused when the immune system attacks its own tissues. "Chronic" means that the signs and symptoms usually last longer than three months and continuously for many years.
In lupus, something goes wrong with the immune system, which is the part of the body that fights off viruses, bacteria, and germs ("foreign invaders," like the flu). Normally our immune systems produce proteins called "antibodies" which protect the body from these invaders.
Lupus (SLE) can affect any organ, such as the joints, skin, kidneys, blood cells, brain, heart, and lungs. Symptoms vary but can include severe fatigue, joint pain, malar rash, light sensitivity and fever. When symptoms become worse there are often called a flare-up.
While there's no cure for lupus, current treatments focus on improving quality of life through controlling symptoms and minimizing flare-ups. This begins with lifestyle modifications, including sun protection and diet. Further disease management includes medications, such as anti-inflammatories and steroids.
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