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In this webinar, LupusChat executives Christele Felix and Tiffany Peterson are moderators for a discussion on the process of donating samples for lupus research.
Patient participation is crucial for advancements in research. Data and samples that patients donate are what help drive research and ultimately lead the way for better treatments and standards of care for various autoimmune diseases.
As you all know, LupusChat is a major advocate of medical research and we strive to share the latest news and resources about Lupus research. The focus of this webinar is to educate the Lupus community about an available option for Lupus patients to contribute to research and help others within the community.
Part of living with Lupus means staying up to date on Lupus and Lupus-related news. As part of my advocacy work, I participated in the November 2020 online edition of the American College of Rheumatology conference, where Lupus was extensively talked about.
When you're first diagnosed with lupus, so many things run through your mind. On top of all the overwhelming shock, there is the question “Will I be able to do the same things I've always done?”. You convince yourself that nothing changes and you can still live the same life you've always known. As much as you try, you can't help but notice the small changes in your life.
Treatment adherence is crucial to getting better. I know from personal experience that when I deviate from my treatment plan (whether it's because of forgetfulness or carelessness), my health suffers. It’s essential for me, the patient, to do my part in managing my health.
As a parent of a child diagnosed with Lupus, how do you prepare your child for school when they have a chronic illness? How do you teach your child to have a voice at such an early age? How do you protect them?